I work in a large community hospital Emergency Center and I review medical records for disability claims at a nation-wide disability insurer. I also serve as a Deputy Sheriff on the SWAT team for a local county, as the medical asset.
Thursday, March 03, 2005
Nothing wrong with her!
What a horrible way for this girl to have lived her life:
From the time Tilly Merrell was a year old, doctors told her family she would never have a normal life -- or even a normal meal.
British doctors found that the food she swallowed went into her lungs instead of her stomach, causing devastating lung infections. They said she had isolated bulbar palsy, and their solution was to feed her through a stomach tube. Forever.
But having a backpack with a food pump wired to her stomach wasn't much of a life for a girl whose favorite smell is bacon frying -- a girl who once broke through a locked kitchen door in an effort to sneak some cheese. So her family got help from their community of Warndon, about 120 miles north of London, raising enough money to take Tilly, now 8, on a 5,000-mile journey they hoped might change her life, a journey to Lucile Salter Packard Children's Hospital at Stanford University.
Doctors at Packard were intrigued that she had no neurological symptoms often associated with the palsy. In all other ways, she was a normal child with a mischievous smile and a truckload of energy. After seeing her Feb. 7, they ran three tests and found out what was wrong with her.